To help the families; child life and Tiombe (our favorite social worker) will be given cards for meals (both in the cafeteria as well as outside of the hospital).  Gas cards to help those that travel long distances-with only 3 Children’s hospitals in the state, travel is almost a guarantee.  This is where we will start and as needs arise we can adjust this.

On staff Therapy for the Oncology department: this really makes me so happy.  Cancer is hard enough to deal with and accept but when you’re trying to navigate your diagnosis, the treatments, the life changes, as well as hormones (teenagers)- Having a therapist that these kids can talk to is such a great thing.  I wish this would have been available to Dylan, but knowing it will be available because of Dylan we are humbled.

Research: although the research won’t be specifically Desmoplastic Small Round Cell Tumor (DSRCT), it will be Sarcoma research to help find and study molecular profiles specific to these rare tumors.  Molecular testing is key to figuring these things out and will help establish cell lines to fight these rare tumors.  DSRCT is specifically so very rare it’s often blanked under other “hard sarcomas”, but through this research, the hope is one day that these tumors will have their own first line treatment, and that one day a family may not have to bury their child.  All of this research will be published in the medical journals and will list Dylan Adams endowment as being a contributor.

Award: Im not going to into specifics here, but I will say-every person on the staff of the 10th floor at MUSC Children’s deserves an award.  The compassion that they all show to patients and families is incredible.  They help these kids through some pretty hard days.  They are angels on earth and they deserved to be recognized for this. 

 Dylan and Dr Kuril after his last appointment before surgery.  This is a special man and beautify perfect boy!